Get involved: Palliative/end-of-life care for people of African and Caribbean descent

People of African and Caribbean descent have been more than twice as likely to die of COVID-19 as people from some other ethnic groups.

We want to make sure people from African and Caribbean backgrounds can access the end-of-life care services that they need, both now but also in the future.

If you are from one of these backgrounds and your loved one died during the pandemic from COVID-19 or another illness, we would like to hear from you as part of our research. This research project is called Palliative and End of life care experiences of people of African and Caribbean dEscent during COVID-19 (PEACE).

If you are ready and able to talk about it, we want to understand more about the care your relative received during this time, as well as your family experiences of this care.

We would also like to speak to professionals who were involved in providing care and support to people and their families, particularly those who identify as being of African and Caribbean descent and died during the pandemic (not necessarily as a direct result of COVID-19).

This is because health, social, voluntary and community organisations offer a broad range of services and can be diverse in their provision, for example, in who they support and how.

Who can get involved?

Relatives and carers

We are specifically looking for the following people:

  • You are aged 18 years or over.
  • You are a bereaved relative and/or carer of a person of African or Caribbean descent who died during the COVID-19 pandemic (April 2020 to present).
  • Your caring role and/or close contact means you can let us know about the experiences and perceptions of your relative who died.

Watch a video explaining more about the project for relatives and carers (YouTube).

Care and support professionals

We are also looking for those who work in health or social care or other organisations that provide support to individuals or communities.

We are specifically looking for the following people:

  • You have provided care and support to people and their families, particularly those who identify as being from African and Caribbean descent and died during the pandemic (not necessarily as a direct result of COVID-19).

Watch a video explaining more about the project for care and support professionals (YouTube).

What will I be asked to do?

Taking part involves a video or telephone interview with one of our researchers.

The interview will last approximately one hour on a date and time that is convenient for you.

To thank you for your time, we will send you a £25 Love2Shop gift voucher.

More information

How to take part

Please contact us if you’re interested in taking part in this project.

Email: peace@newcastle.ac.uk

 

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